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Honoring Me on Mother’s Day In Celebration of My Angels

Honoring Me on Mother’s Day In Celebration of My Angels

by Fetal Health Foundation | May 16, 2016 | Blogs, Story

We are saddened by the loss of Ella and Grace to twin-to-twin transfusion syndrome.  Their mother, Jennifer, wrote this piece on Mother’s Day, and she’s allowing us to share it here. I am a mother. I have thought all morning about what today means to me...
The Redmond Family Story

The Redmond Family Story

by Fetal Health Foundation | May 5, 2016 | Story, Twin-to-Twin Transfusion Syndrome

My husband and I found out we were pregnant over Memorial Day weekend. It was still really early, but I was having some side pain and my sister had an ectopic pregnancy once so I wanted to get checked out. We went in for our first OB appointment with feelings of...
Matthew, a LUTO Fighter and Survivor

Matthew, a LUTO Fighter and Survivor

by Fetal Health Foundation | Mar 6, 2016 | Lower Urinary Tract Obstruction, Story

My son is Matthew. He was diagnosed with LUTO at week 17 of our pregnancy. It was a difficult pregnancy because he had a twin sister with him in there. By the time we got to our MFM, his kidneys were very damaged, his bladder was full and was thick- walled, his chest...
Aran’s Story

Aran’s Story

by Fetal Health Foundation | Feb 18, 2016 | Blogs, Fetal Hydrops, front-page, News, Story

Aran Hissam is a new member of the Fetal Health Foundation Board.  Before joining our organization, she channeled her experience with a fetal syndrome, non-immune fetal hydrops, to her work with the Brianna Marie Foundation.  The Fetal Health Foundation’s...
Talitha’s Story

Talitha’s Story

by Fetal Health Foundation | Feb 3, 2016 | Blogs, Story, Twin-to-Twin Transfusion Syndrome

After giving birth to twins who survived Twin-to-Twin Transfusion Syndrome, Talitha McGuinness joined with Lonnie and Michelle Somers to help further efforts to save babies with fetal syndromes.  We asked her to share her story. Our twin-to-twin transfusion syndrome...
After Losing a Baby, Does Life Get Better?

After Losing a Baby, Does Life Get Better?

by Fetal Health Foundation | Jan 21, 2016 | Blogs, front-page, Story

Fetal Health Foundation’s Executive Director, Dalia EL-Prince shares her story of coping after the loss of her baby in 2003. “Does it get better?” Today I was asked, “Does it get better after the loss of your baby? Does it?” It’s a...
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Fetal Syndrome Stories

  • Abdominal Wall Defect
  • Agenesis of the Corpus Callosum
  • Alloimmune Thrombocytopenia
  • Aortic Senosis
  • Bowel Obstruction
  • Cardiac Disease
  • Cleft Lip and Palate
  • Cloaca Exstrophy
  • Congenital Chylothorax
  • Congenital Cystic Adenomatoid Malformation
  • Congenital Diaphragmatic Hernia
  • Congenital Heart Disease/Defects
  • Conjoined Twins
  • Esophageal Atresia with Tracheosphageal Fistula
  • Fetal Cardiac Abnormalities
  • Fetal Chylothorax or Hydrothorax
  • Fetal Hydrops
  • Fetal Hypothyroidism/ Hyperthyroidism
  • Gastroschisis
  • Hemolytic Disease
  • Hydrocephalus/ Ventriculomegaly
  • Hypoplastic Left Heart Syndrome
  • Intrauterine Growth Restriction
  • Kidney, Bladder, and Genital Abnormalities
  • Lower Urinary Tract Obstruction
  • Meningocele
  • Myelomeningocele/Spina Bifida
  • Neurological Defects
  • Non-Immune Hydrops
  • Omphalocele
  • Pericardial Teratoma
  • Pleural Effusion (Hydrothorax)
  • Pleural Effusions
  • Pulmonary Agensis
  • Pulmonary Atresia with Intact Ventricle Septum
  • Pulmonary Sequestration
  • Rh Disease
  • Sacrococcygeal Teratoma
  • Selective Intrauterine Growth Restriction
  • Twin Reversed Arterial Perfusion Sequence
  • Twin-to-Twin Transfusion Syndrome
  • Ventriculomegaly
  • RESOURCES FOR SUPPORT

    Hope After Loss
    Now I Lay Me Down To Sleep
    Pregnancy After Loss Support (PALS)
    Society for Maternal and Fetal Medicine
    Still Mothers
    TAPS Support Foundation

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