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Coping with the Unexpected When You’re Expecting – 3 Things to Keep in Mind

Coping with the Unexpected When You’re Expecting – 3 Things to Keep in Mind

by Fetal Health Foundation | Nov 28, 2018 | front-page, News, Story

Expectant parents have a great deal on their agenda during the months leading up to delivery. With so much to do, managing the details can be overwhelming − especially when things don’t go according to plan. The truth is, whether you are a first-time parent or seasoned with experience, the journey can often be unpredictable.

Why We’re So Excited About The Latest Advances in Fetal Medicine

Why We’re So Excited About The Latest Advances in Fetal Medicine

by Fetal Health Foundation | Oct 1, 2018 | front-page, News, Resource News, Story

When my wife and I received the news that our baby girls had Twin to Twin Transfusion Syndrome, we were devastated. That was 15 years ago and there weren’t a lot of options or resources available for those diagnosed with a fetal syndrome. Fortunately for us, we...
Four Things to Consider When Dealing with the Uncertainty of TTTS

Four Things to Consider When Dealing with the Uncertainty of TTTS

by Fetal Health Foundation | Sep 6, 2018 | front-page, News, Story, Twin-to-Twin Transfusion Syndrome

A scar blankets the wound that materializes from physical trauma endured in the past. Displayed on the body like artwork on a canvas, the design tells the story of a major life event. In the 2018 edition of Connexions magazine three women discuss their badges of honor...
Twin Girls Teach Dad Valuable Life Lessons During 
Half-Marathon

Twin Girls Teach Dad Valuable Life Lessons During 
Half-Marathon

by Fetal Health Foundation | Jun 13, 2018 | front-page, News, Story, Twin-to-Twin Transfusion Syndrome

Lonnie Somers experiences the celebration that comes with Father’s Day each and every day. Fifteen years ago, the marathon-running CFO and his pregnant wife, Michelle, raced 2,000 miles to Tampa, Fla. from Denver, Colo. in search of lifesaving help for their unborn twins.

Connexions Magazine 2018 is Live

Connexions Magazine 2018 is Live

by Fetal Health Foundation | Apr 2, 2018 | front-page, News, Resource News, Story

Fetal Health Foundation Connexions magazine for 2018 has just been published online. The annual issue includes survivor photos, news on the latest grants, stories from families who have experiences fetal syndromes, and why you should be picky when choosing an OB.

Family of Triplets Honor Angel Sister at The Great Candy Run Minneapolis

Family of Triplets Honor Angel Sister at The Great Candy Run Minneapolis

by Fetal Health Foundation | Sep 28, 2017 | Blogs, Events, front-page, News, Story, Twin-to-Twin Transfusion Syndrome

Based on blood levels, the parents were told they were probably expecting one or two babies.  However, an ultrasound at six and a half weeks showed one sac with one baby and a second sac with identical triplets. Read their TTTS story.

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Fetal Syndrome Stories

  • Abdominal Wall Defect
  • Agenesis of the Corpus Callosum
  • Alloimmune Thrombocytopenia
  • Aortic Senosis
  • Bowel Obstruction
  • Cardiac Disease
  • Cleft Lip and Palate
  • Cloaca Exstrophy
  • Congenital Chylothorax
  • Congenital Cystic Adenomatoid Malformation
  • Congenital Diaphragmatic Hernia
  • Congenital Heart Disease/Defects
  • Conjoined Twins
  • Esophageal Atresia with Tracheosphageal Fistula
  • Fetal Cardiac Abnormalities
  • Fetal Chylothorax or Hydrothorax
  • Fetal Hydrops
  • Fetal Hypothyroidism/ Hyperthyroidism
  • Gastroschisis
  • Hemolytic Disease
  • Hydrocephalus/ Ventriculomegaly
  • Hypoplastic Left Heart Syndrome
  • Intrauterine Growth Restriction
  • Kidney, Bladder, and Genital Abnormalities
  • Lower Urinary Tract Obstruction
  • Meningocele
  • Myelomeningocele/Spina Bifida
  • Neurological Defects
  • Non-Immune Hydrops
  • Omphalocele
  • Pericardial Teratoma
  • Pleural Effusion (Hydrothorax)
  • Pleural Effusions
  • Pulmonary Agensis
  • Pulmonary Atresia with Intact Ventricle Septum
  • Pulmonary Sequestration
  • Rh Disease
  • Sacrococcygeal Teratoma
  • Selective Intrauterine Growth Restriction
  • Twin Reversed Arterial Perfusion Sequence
  • Twin-to-Twin Transfusion Syndrome
  • Ventriculomegaly
  • RESOURCES FOR SUPPORT

    Hope After Loss
    Now I Lay Me Down To Sleep
    Pregnancy After Loss Support (PALS)
    Society for Maternal and Fetal Medicine
    Still Mothers
    TAPS Support Foundation

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