How Can I Help? Creative Ways to Support the Foundation
“How can I help?” It’s a question we, at the Fetal Health Foundation (FHF), hear frequently. For some, the motivation to help comes because they have experienced a fetal syndrome; others reach out to show support for a friend or family member in the midst of a...
$50,000 Research Grant Deadline Approaching!
Brianna Marie Memorial Research Grant fund reopened with an increase to $50,000 and a new deadline of September 15th. The mission of the Brianna Marie Memorial Research Grant (managed by the Fetal Health Foundation) is to improve health outcomes for pregnancies and...
How to Obtain Social Security Disability Benefits for a Child with a Fetal Syndrome
We're often asked by parents about resources that are available to families. In a guest post, Bryan MacMurray shares information on how to obtain Social Security Disability Benefits for a child with a disability related to a fetal syndrome. Applying on Behalf...
Persistence Pays … From TTTS Survivor to Discovery Girl Role Model
12 year-old Aspen Somers contributes her first blog post to the Fetal Health Foundation.
Read moreI knew nothing about TTTS at that point. My doctors never discussed it with me. Even as a sonographer, I didn’t know how to tell if it was happening.
A Sonographer Shares Her Personal Story
Let me start by saying that I’m a Sonographer. I knew I was pregnant and knew it was twins very early – at around 5 and a half weeks. I knew nothing about TTTS at that point. My doctors never discussed it with me. Even as a sonographer I didn’t know how to tell if it was happening.
Honoring Me on Mother’s Day In Celebration of My Angels
We are saddened by the loss of Ella and Grace to twin-to-twin transfusion syndrome. Their mother, Jennifer, wrote this piece on Mother's Day, and she's allowing us to share it here. I am a mother. I have thought all morning about what today means to me and if I even...
10 Ways To Help a Friend During A Difficult Pregnancy
When a friend’s baby is diagnosed with a fetal syndrome or she is having a difficult pregnancy for other reasons, her family’s life turns upside down. It is often hard to know what to say - or how to help. Several of FHF's board members have experienced fetal...
My Letter to The Silent Grievers
Dalia EL-Prince served as the Executive Director of the Fetal Health Foundation. Recently I joined the Fetal Health Foundation to offer hope to unborn babies and help families who are faced with the loss of their child during pregnancy or after delivery. Though I...
The Redmond Family Story
My husband and I found out we were pregnant over Memorial Day weekend. It was still really early, but I was having some side pain and my sister had an ectopic pregnancy once so I wanted to get checked out. We went in for our first OB appointment with feelings of...
Zika Virus: Parents’ Top 10 Questions
Answers to these questions and more from the Fetal Health Foundation and Children’s Hospital Colorado. What is the Zika virus? How do you get the Zika virus? If a pregnant woman has traveled to an affected area and is concerned about the Zika virus, what should she do? Should she get tested, and if so, where is the best place to start?
Zika Virus 101 Infographic
The Zika Virus and Microcephaly are in the news recently. Many of us wonder why we haven't heard of it before, and what we can do to protect ourselves and our family. One of our readers, Emily Maynard, put together an easy-to-understand infographic about the virus....
Spreading Sweetness: The Great Candy Run Expands to Three Cities
With The Great Candy Run 5k races series taking place in Minneapolis, Seattle, and Denver, 2016 is shaping up to be the sweetest year ever for our Foundation’s flagship benefit.
Take a Peek at Our New Connexions Magazine!
We're thrilled to announce our new magazine! Connexions is published annually by the Fetal Health Foundation in order to bring together the many realms surrounding a fetal syndrome diagnosis. The magazine connects doctors and fetal centers, updating them on the latest...
Matthew, a LUTO Fighter and Survivor
My son is Matthew. He was diagnosed with LUTO at week 17 of our pregnancy. It was a difficult pregnancy because he had a twin sister with him in there. By the time we got to our MFM, his kidneys were very damaged, his bladder was full and was thick- walled, his chest...
10 Things To Do After a Fetal Diagnosis
“What should we do now?” parents wonder. Fetal Health Founder Lonnie Somers shares what he’s learned about the time after a fetal diagnosis.
From Colorado to the World: HOPE For Fetal Conditions
Imagine a doctor saying, "Your baby may not survive." Time is short. You search for information, and when you find it, you can't be sure it is reliable. That was our situation 13 years ago. I remember all too well searching for hope, information, and support for...
Aran’s Story
Aran Hissam is a new member of the Fetal Health Foundation Board. Before joining our organization, she channeled her experience with a fetal syndrome, non-immune fetal hydrops, to her work with the Brianna Marie Foundation. The Fetal Health Foundation's Research...
Michelle’s Miles Diary | A Welcome Partner for 2016’s First Run
Last November I challenged friends, family and really all Fetal Health Foundation supporters to make a year-end donation that would ultimately serve as a challenge to me to run one mile for every ten dollars donated. I had hoped to enter into 2016 with a monumental...
UPDATE: Zika Virus and Pregnancy | Information for Patients
The Fetal Health Foundation continues to receive inquiries about the Zika virus and a possible connection to a fetal condition, microcephaly. Dr. Anna G. Euser is coordinating the Zika virus efforts for Maternal-Fetal Medicine Doctors at the Colorado Institute for...
Talitha’s Story
After giving birth to twins who survived Twin-to-Twin Transfusion Syndrome, Talitha McGuinness joined with Lonnie and Michelle Somers to help further efforts to save babies with fetal syndromes. We asked her to share her story. Our twin-to-twin transfusion syndrome...
After Losing a Baby, Does Life Get Better?
Fetal Health Foundation's Executive Director, Dalia EL-Prince shares her story of coping after the loss of her baby in 2003. "Does it get better?" Today I was asked, "Does it get better after the loss of your baby? Does it?" It's a question I often struggle to answer....
A Resource for Families: Miracle Flights
The Fetal Health Foundation is pleased to spread the word about Miracle Flights. This terrific nonprofit organization also dedicated to families offers resources to families for whom travel for medical reasons can make a miracle possible. We're happy to have them as...
Twin to Twin Transfusion Syndrome Video
The team at Fetal Center at Children's Memorial Hermann Hospital has put together an informative video detailing the condition known as Twin To Twin Transfusion Syndrome, and asked that we share it with you. Twin Twin Transfusion Syndrome Video By building awareness...
New Public Service Announcement for Fetal Health Foundation
Families with a fetal diagnosis are the heart of our work. Thanks to your support, they are not alone. Our public service announcement will soon be shown throughout the country. You can see it- and share it- here. To be part of our work, share your story, or make a...
Girls from Kemp Elementary School Run the Great Candy Run
The Commerce City Sentinel Express featured a great article about girls from Kemp Elementary running the Great Candy Race, which races funds for the Fetal Health Foundation. Autumn Senchuk coaches running clubs to help girls gain confidence, and brought 29 amazing...