From Colorado to the World: HOPE For Fetal Conditions
Imagine a doctor saying, "Your baby may not survive." Time is short. You search for information, and when you find it, you can't be sure it is reliable. That was our situation 13 years ago. I remember all too well searching for hope, information, and support for...
Aran’s Story
Aran Hissam is a new member of the Fetal Health Foundation Board. Before joining our organization, she channeled her experience with a fetal syndrome, non-immune fetal hydrops, to her work with the Brianna Marie Foundation. The Fetal Health Foundation's Research...
Michelle’s Miles Diary | A Welcome Partner for 2016’s First Run
Last November I challenged friends, family and really all Fetal Health Foundation supporters to make a year-end donation that would ultimately serve as a challenge to me to run one mile for every ten dollars donated. I had hoped to enter into 2016 with a monumental...
UPDATE: Zika Virus and Pregnancy | Information for Patients
The Fetal Health Foundation continues to receive inquiries about the Zika virus and a possible connection to a fetal condition, microcephaly. Dr. Anna G. Euser is coordinating the Zika virus efforts for Maternal-Fetal Medicine Doctors at the Colorado Institute for...
Talitha’s Story
After giving birth to twins who survived Twin-to-Twin Transfusion Syndrome, Talitha McGuinness joined with Lonnie and Michelle Somers to help further efforts to save babies with fetal syndromes. We asked her to share her story. Our twin-to-twin transfusion syndrome...
After Losing a Baby, Does Life Get Better?
Fetal Health Foundation's Executive Director, Dalia EL-Prince shares her story of coping after the loss of her baby in 2003. "Does it get better?" Today I was asked, "Does it get better after the loss of your baby? Does it?" It's a question I often struggle to answer....
A Resource for Families: Miracle Flights
The Fetal Health Foundation is pleased to spread the word about Miracle Flights. This terrific nonprofit organization also dedicated to families offers resources to families for whom travel for medical reasons can make a miracle possible. We're happy to have them as...
Twin to Twin Transfusion Syndrome Video
The team at Fetal Center at Children's Memorial Hermann Hospital has put together an informative video detailing the condition known as Twin To Twin Transfusion Syndrome, and asked that we share it with you. Twin Twin Transfusion Syndrome Video By building awareness...
New Public Service Announcement for Fetal Health Foundation
Families with a fetal diagnosis are the heart of our work. Thanks to your support, they are not alone. Our public service announcement will soon be shown throughout the country. You can see it- and share it- here. To be part of our work, share your story, or make a...
Girls from Kemp Elementary School Run the Great Candy Run
The Commerce City Sentinel Express featured a great article about girls from Kemp Elementary running the Great Candy Race, which races funds for the Fetal Health Foundation. Autumn Senchuk coaches running clubs to help girls gain confidence, and brought 29 amazing...
A Big Thank You!
We'd like to thank the Chameleon John team for their generous donation. ChameleonJohn is on a mission to help people save money on their online purchases. After having saved money for tens of thousands of consumers, they decided to take their mission one step further....
Ten Sweet Reasons to Be Part of the Great Candy Run
The Great Candy Run comes to Minneapolis October 14th, and Denver November 12, 2017. If the idea of a candy-themed race isn't temptation enough for you, here are ten reasons to join us for the Fetal Health Foundation's flagship benefit event. 10. Kid will love...
Fetal Health Foundation on Colorado and Company, KUSA Channel 9
Lonnie Somers and Mary Beth Martin talk about how the Great Candy Run benefits the Fetal Health Foundation. To join us in fighting for the lives of babies diagnosed with fetal syndromes, donate now.
The Great Candy Run: Lollipops, chocolate, and a 5K to benefit fetal health research
Many thanks to Beth Reese Cravey of the Florida Times-Union who wrote a terrific piece on twins Jesse and John Williams' fight to survive Twin-To-Twin Transfusion Syndrome. ___ If you can't make it to a Great Candy Run this year, you can still stand with this...
A Note from Our Founder
Fetal syndromes affect over 800,000 babies each year in the U.S. Sadly we lose over 200 babies a day. Everything from TTTS (Twin-to-Twin Transfusion Syndrome) to issues causing premature birth and then death are affecting our unborn children. We have a lot of work...
3-D Printed Ultrasound Models to Improve Fetal Surgery | 2015 Brianna Marie Grant Winner
Update: We're delighted to note that after being recognized in 2015, Dr. Miller is among the authors of a 2020 study on success in treating CDH with "FETO -- fetoscopic tracheal balloon occlusion -- is a minimally invasive procedure in which a fetoscope is inserted...
A Needle-Delivered Polymer for Spina Bifida| 2015 Stowell Grant Winner
The Fetal Health Foundation awarded the 2015 Nathanael and Gabriel Stowell Grant to Dr. Ahmed “Rony” Marwan at the University of Colorado to further his work in improving outcomes for babies diagnosed in utero with Spina Bifida. Spina Bifida occurs when an area of the...
Read moreA search of the literature has not produced any cases of fetal hydrops associated with an inadvertent HSG in the early first trimester.
Medical Report: Summary for L.S.
L.S. originally presented at 42 years of age G-1, P1001, with an over one-year history of secondary infertility. L.S. and P.R. conceived their first child without delay and delivered via Caesarean section nearly 3 years prior. This delivery was complicated by post-partum hemorrhage and retained placental fragments requiring an emergent dilation and curettage (D&C). Her recovery after this intervention was unremarkable. She nursed for 1 year and had return of regular cyclic menses after weaning.
Our TTTS/ TRAP story…and 7 yrs later.
The news of twins was surreal. My husband and I were overjoyed but that joy was short lived.
Our doctor detected an abnormality on a ultrasound when I was only 10 weeks along. Not sure what it was, she had me come back the next week for a better look. I was quickly referred to a fetal specialist who gave us a diagnosis of TTTS and referred us to Dr. Ruben Quintero.
Our official diagnosis: TTTS with and an Acardiac Twin
Read moreAt our 18-week ultrasound it was discovered that we had an acardiac twin.
Magical Julia
I just want to share my story about my daughter, Julia, who is the miracle who resulted from my TRAP pregnancy. In the fall of 2009, I suffered two miscarriages. The following January, I became pregnant with twins naturally. At about nine weeks, we were told one of...
Read moreI was so relieved to hear his heartbeat and know everything was ok. Little did I know it wasn’t.
Wyatt’s Story
I was one day away from being 35 weeks. I had felt movement from my son becoming less and less in the prior days. I thought he was growing and running out of room. I had grown quite a bit in the last month. I was very uncomfortable and just felt “wrong” and different...
Read more“This could be normal, but we are sending you to a perinatologist for another ultrasound to see what he thinks.”
Xander’s Story
I remember the day. It was October 19th, 2010 and I had just had two positive pregnancy tests. I must admit, I was scared. My youngest was not 2 yet, and I wasn’t sure how I felt about having another in diapers. But it was another blessing from God and my husband and...
Read moreShe was pulled from my body gasping for air.
She breathed by herself. She did not cry.
Ariana’s Story
A life of four days can appear to some, to have little consequence. It can appear to be to some, insignificant. What can one achieve in four days? My daughter Ariana, lived just four days. And as a result of her short life, she saved the life of our third child, our...
Read moreI was hesitant to bring my daughter to our 19 week ultrasound in case something was wrong. Something was wrong.
CCAM – Sean’s story
After becoming pregnant with my daughter after a month of trying and having a textbook pregnancy, I never expected that it would take 16 cycles for baby #2 or that there would be complications. I was hesitant to bring my daughter to our 19 week ultrasound in case...
Read moreOne number stuck in my head: 5%
That would be his chance of survival if he survived the pregnancy.
Maxwell’s Story
I should start by saying that this was my second pregnancy. My first pregnancy ended badly. I was pregnant with a little boy we would name Thomas. Thomas was diagnosed with OSB (open spina bifida) and several other things that are commonly associated with OSB. I was...